Cystic Fibrosis (CF) is one of the most common genetic (inherited) diseases in America. It is also one of the most serious. It mainly affects the lungs and the digestive systems in the body, causing breathing problems and problems digesting foods. It is a chronic disease that currently has no cure.

The CF Center at Stanford is an integrated disease management program that follows patients from diagnosis through adulthood.

With the current longer life expectancy for patients with Cystic Fibrosis, our clinic population includes patients of all ages. More than half the patients followed by the Stanford CF Center are adults aged 18 years or older.

For Families of Pediatric Patients

Dear Patient:

As partners in your care we are very interested in learning about your experiences with the CF center. We would like to ask for a few minutes of your time to share your experiences through the following surveys which have been designed to capture the different aspects of the services we provide. The surveys are free from any identifying information so your confidentiality is fully assured.

If you would like to tell us about:

• your experience with the CF Clinic »
• specific aspects of the care we provide »

If your child was ever

• hospitalized and you would like to tell us about that experience »
• on IV Antibiotics at home and you would like to tell us about that experience »